No head pain today. Brief appearance of Lemtrada rash yesterday on my arms which I treated by using Solarcaine which took the itch down in a out 45 seconds and the Aloe Vera did the rest making it disappear. I can see the rash trying to come back but I am reapplying to my whole body regularly. Had a couple of big patches appear this morning on by ass checks but that's gone now thank goodness so no inappropriate scratching :-)
No IV Lemtrada or anti-histamine yet so will start adding those shortly I hope
Happy day 4 - I am feeling great :-)
10:55 - IV Anti-histamine done ... I'll expecting a pensioners nap again this afternoon - that stuff really does the whammy on me
11am - Lemtrada started :-) bye bye another 20% of my defective immune system :-)
12:20 - just a quick WOOHOO about my blood pressure - holding steady between 140 and 150 over 80 ...... go blood pressure :-)
14:20 - 39 minutes left to go, blood pressure doing great, no headache to speak of no more rash either. Can't wait to get up and go for a wander around
18:00 - may the fleas of a thousand camels infest you. Lem rash everywhere. And I do mean everywhere. I could happily have clawed every inch of skin off my body despite the calming of the solarcaine. An extra shot of IV Anit-histamine and it was a miracle RELIEF was almost instant. Needless to say I slept like a baby all night and now feeling great all ready for day 5 immune system nearly squished
Good luck everyone xxxx
It's been over 7 years since I started on my Lemtrada journey. It's a marathon not a sprint and in my case it's got a spin off show too now I'm on Ocrevus. Best decisions I could have made, no regrets, fight for yourself because you're the best person to do it This is normally updated weekly please subscribe so it will tell you when I've updated it
Thursday, 21 May 2015
Day 4 Treatment Log
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Sounds like it is going well for you Tracy, keep up the good work and keep applying the cream. I was prescribed piriton for a week after treatment too, but didn't need them anyway.ReplyDelete
Did you manage to finish your wine? I hope so
I have to say that in a very uncharachteristic moment of cowardice I actually didn't have the rest of the wine last night :-OReplyDelete
Still feeling great, I've got this thing aced :-)