Friday 23 February 2018

1y40wks Post R2 - Puppies, Cursed Sofa Part 1 and blood results

Sorry for the late post this week, but it’s taken until today to get my full blood results back. Following on from lst months bloods once again I have ‘funky’ thyroid readings and now I need to go and see the doctor about them.

The other funky reading is starting to come back inline after many months but then I’ve never really worried about that one.

In non Lem news we have a new puppy and she’s adorable, so Winston-Dog and Amber-Dog have a sister who’s name is Bella – although after yesterday she may also have the nickname ‘Aloe Vera Plant Destroyer’ ….. she inflicted terrible damage on the poor innocent plant (the joys of puppies) fortunately not eating it more biting off all its limbs and randomly spitting them out around the kitchen diner

Bella is a German Pointer cross – the cross part possibly being a rather small whippet. She’s a rescue from Spaniel Phoenix Rehoming who are THE most amazing charity helping to bring dogs and puppies from shelters where they have kill policies into forever homes across the UK and sometimes around the world. Look them up on Facebook . they are amazing and run solely on donations so if you’re feeling generous a couple of pounds their way would be a great help xxx (sorry I know I don’t ever say things like that but I can’t help myself – I want to save them all but Gareth says NOOOOOOO)

I had a lovely afternoon tea over the weekend with a colleague from my former job, caught up, put the world to rights and generally did the ‘Ladies who lunch’ thing. Felt a bit of a scruff at the Hilton wearing trousers I’d just walked the dogs in so I had a few random dog paw marks on them but the time I’d allocated to get properly dressed for the occasion was suddenly consumed by the gentlemen coming to take away our old sofas in advance of the delivery of the new one - more about this in a moment - and just never had time to change so I felt a bit of a scruff but it was lovely to catch up with the beautiful Nour.


My best advice – MEASURE, MEASURE and MEASURE again – all of the sides Height, Width and Depth – in our case Height became very important 😊

Disaster number 1 was that it was delivered in an enormous truck despite our request that it some in something small or it wouldn’t fit down the lane. The 2 poor delivery guys had to put it on a flat ‘skate’ thing and push half thr sofa down nearly 200 meters of barely tarmacked road.

Disaster number 2 was that after it came through the front door and was rotated it became very quickly obvious that it wasn’t going to fit through the living room door – ever.

Cue phone calls to the supplier regarding returning it while we got a quote to have a window removed so the sofa could be put into the lounge through the hole and then the window reinstalled – of course it’s winter here, so the timing of this needs to be finely tuned and Oak Furniture land at the time of writing this haven’t yet confirmed time slots so I can share them with the lovely window man to see if he’s available.

In the interim Gareth and I have his grandparent’s chairs and foot stools in the lounge as our only places to sit

Oh and I’m away for 3 days next week with work so guess what I’m not going to be here to deal with it


Even I can’t project manage my way out of this one 😊

On a bright note HAPPY FRIDAY everyone, hope you’re all looking forward to an awesome weekend (assuming you have somewhere comfortable to sit and enjoy it of course LOL)

It’s all good – the MS is quiet and life is epic.

Anyway bloods – here you go xxx

Friday 16 February 2018

1y39wks Post R2 - Apologies for the absence

I have to say it's been a difficult couple of weeks in 'real life' which seem to have reflected pretty evenly onto MS life.

Losing Arthur has hit so hard, the circumstances of it, rather than that he's gone have been very difficult to get my head around. I've had difficulty sleeping at night, but have no problem simply falling asleep in the evening in front of the television. Tiredness naturally means things like wonky legs, rubbish balance and random patches of numb appear and disappear when they feel like it.
The funeral is now planned for March 2nd (the day before my birthday :-( ...) these things take so very long to arrange when someone dies in circumstances like this, but at least we have time to plan and grieve.

In other news Amber dog has become quite 'zombie like' again on the KBR medication, so we are tweaking the dose a little to see if she comes out of it a little, it's really having an impact on her ability to 'hold it' and there have been some accidents. Having experienced something like this as a result of MS, I have no concerns about clean up, but it's really having an effect on her mentally when an accident happens, she knows and she hides here head and tries to sink into the floor - it breaks my heart to see her this way. But when she's out at the park, she's happy and bouncy and has the biggest smile - so we have to see how it goes and do the best we can for her - I've tweaked her schedule with the lady who comes in while we are out at work - fingers crossed it helps.

In the interim I'm playing with the NHS and the referral to the new Neurologist in the Berkshire area. The automated 'book your own referral system is a steaming tower of turd, after 3 weeks of trying to book online and getting 'there are no appointments' message I finally reverted to phone calls today. Having replicated my outcome using the password I was sent I have now been moved to the 'we will send a letter to your home' method - however they can't confirm if it will be the Neurologist requested who I'm going to end up on the list for ..... so that's another hurdle that needs to be crossed if it happens.

So the recipe for the week is sleep, sleep and more sleep I think and get get everything back in order.

I had my month 21 post Round 2 blood tests this morning and spectacularly failed to pee again so I'm trying to remember to fill a pot today so I can drop it in later on today.

All in all life is great MS wise, the other stuff will be okay

Much love xxx

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