Tuesday, 2 August 2022

Wedding things - ours and other peoples

 Quick update on life, we had out wedding anniversary over the weekend - a very lovely meal was enjoyed at the Italian in Newbury that is now our favourite in the area (for Italian food) 

 We're off up to Scotland on Saturday for a wedding on Sunday - the beautiful Aeleana and her lovely husband to be Micheal. Allie is one of my 'acquired' sisters - well her whole family are acquired really, her brother Steph and mum complete the set. I have my outfit, Waze to guide us for the 440 mile drive and a play list with 32 hours of music on it.

 The dress I will be wearing is one I haven't been able to fit in for over 9 years and I've had it shortened to a cocktail (spelt wrong???) dress length - the 3 1/2 stone of weight loss is really noticeable now 😎

Just got to make it to the end of the week with my sanity intact I guess.

Hope you're well

I've done another video on the tube thingy which shows the changes with the weight loss and the exceedingly long hair - enjoy - laugh at me whatever you need

Take care 

Much love xx




Friday, 15 July 2022

Oh dear - where did that time / weight / pain go?

 Perhaps it's the heat wave, or possibly menopause brain - so sorry I've not posted for a month.

There has been some drama and a trip to Wales involving a very badly behaved and gangrenous Gall Bladder which had to be removed from the bagging area and then huge amounts of antibiotics to ensure there was no infection left. The 4 1/2 hour drive either way was brutal and it took a few days once home to simply catch up on the rest and let the sore shoulders loosen up again.

We've had Gareths parents here for the weekend for a lovely catch up and wonderful food.

I had my injection in my hip, it's been pretty well behaved since then but it wasn't a pleasant procedure and whilst the lovely doctor said I was very brave, sadly she didn't give me a lollipop or a sticker 😂😂

So here in the UK the temperatures are apparently hotter than Jamaica right now - there are 2 ways to tell if someone is British - do we like queueing (yes) and are we complaining about the weather (always) 😂😂 

I think I've previously mentioned in here that I think I was born in the wrong place because like a lizard or a snake I like to be warmed by the sun - I now formally withdraw that suggestion 😂😂😂 what was I thinking ? I'm ginger - I burn on a cloudy day, I'm middle aged, menopausal and have MS - I'm not built for this 😂😂😂😂

On the subject of 'project Tracy' - I've now surpassed 3 stone in weight loss - I'm actually only 3lb's away from 3 1/2 stone now (that's 20.9kg if that's how you recognise the numbers or 46lb if you can't do the stones thing) I'm into my first pair of 'aspirational' jeans easily and if it ever cools down enough for me to get the motivation up I might be into the middle pair too, but it's simply too warm to even try right now 😂😂😂 - It's still a work in progress, but I'm getting there and it's not horrible.

It's our 11th wedding anniversary on the 30th so we're back to the Hand and Flowers for a lovely meal, my new office desk is due next week so I'm having a clear out this weekend to get ready for it. We're up to Scotland on the 6th of August for the wedding of a beautiful lady who I'm proud to regard as a sister - I definitely need to invest in a new outfit and hat for the occasion - it's going to be so good to get together with the Scottish clan, it's been far too long and there are 2 little clan members that I've not even met in person yet.

It's Friday, the weekend is coming, the BBQ's and pizza oven are being put through their paces and life is good.


Hope life is treating you well and you stay happy

Much love from me

xx

Friday, 17 June 2022

Hip procedure booked, weight loss continues and by heck it's warm

 So first lets address the big hot, sweaty elephant in the room .... (not me) summer is here and the UK is hot hot hot. Now with the high number of latent Scottish ginger genes I possess this was never a great time for me in the past. To pinch the line from the film Terminator - 'anyone (who's ginger) not wearing factor 1,000,000 is going to have a really bad day' - it really does sum me up perfectly. I burn through Factor 50 in the UK when it's 15 degrees and sunny - yes that sun block you can use on a newborn - no use to this  ginger at all.

I saw the hip specialist last week and had an X-ray taken too. Turns out I have Osteoarthritis in my right hip - the first official arthritis diagnosis although it's been mentioned occasionally over the last few years. Not a surprise really since both my mum and grandmother had it. 

I'm booked for an ultrasound guided injection in my hip next week in Ascot (once the racing is over and done with) steroids and pain killers initially - apparently it should give a good idea where we need to go from depending upon the results.

I'm still losing weight, still working with the Physical Trainer 3 times a week and life remains terribly 'beige' if I'm going to be totally honest. There's not a lot to report on in my MS world, it is what it is and I'm working hard to make it better.

Hope you're taking care of yourself and those you love xx

Wednesday, 1 June 2022

Round 4 done, nearly 3 stone lost and hip update

 I had round 4 last Thursday and as previously mentioned - I had the fast infusion and I had it without steroids this time 😎

It was all really rather uneventful, if I'm honest - no faster than any other infusion because I got there for 8am, but it was 11:30 before they plumbed me in. I had a lovely anti histamine snooze and it was all done

Unknown to me the woman in the bed opposite had requested a heater be plugged in and then pointed it in my direction so when I was done and unplumbed I had the most horrendous menopause sweat and had to sit down for nearly an hour. Can't really complain as the HRT 'happy patch' on my arse cheek are doing a grand job - I've had 2 full on hot flushes in a week instead of the 10-15 a day I was having before the happy patches.

The drive home from the hospital was a windows open, coffee on tap and loud rock music affair, I got home we ordered takeout and by 7:30pm I was fast asleep. All things told the Flush really flattened me - I think I'd have been okay if that hadn't happened, but who knows.

The diet is still going well. I'm now coming up on the 3 stone loss mark. I've lost 2 dress sizes so far and over 30 inches cumulatively. I've still got a long way to go but it's going really well especially in conjunction with the Physical Training sessions - I have muscles - MUSCLES in places I've not had muscles for many many years 😎 we're not talking substantial body builder stuff here, just some visible proof that I'm trying bloody hard to get myself back

I had an MRI last week too on my 'gippy hip' and wouldn't you know it - it's definitely leaning towards the 'knackered' end of the spectrum. The Spine guy has referred me to The Hip Guy (yes I know there's a song about that) so more news on that front a week tomorrow.

I managed to do Costco last weekend with a trolly as a walking aid (Bob was flat so I had no choice) and I was still playing catch up after a day visiting Claire, taking the boys to the park, taking the Pizza oven to her so she could enjoy Gareth's home made stuff from the comfort of her bed.

Life is good, if we had more sunny days and less overcast, cloudy and rainy it would be better

stay safe, stay well, much love from me xx



Monday, 23 May 2022

MRI bloods and Round 4 preparations and HRT

 So my 4th round of ocrevus has moved forward to Thursday next week, all but 1 of the required bloods have been done (the Lymphocyte Subset levels can't be done locally but have been agreed to be done on the day by the charing cross MS Nurse team) It's also been agreed that this time I can have it without the steroid 'starter' ...... the steroids have always hit me hard, they mess with my bodies temperature control for weeks and on top of my Menopause hot flushes thats was going to be an absolute nightmare - so this time I'll be taking my shot of Ocrevus neat 😎

I've had an MRI this week on my hip thanks to the Spine guy and hope to have news on that soon. 

The next thing its HRT - OMFG - miraculous stuff - slap a magic Conti patch on my arse and suddenly I'm human again - I have energy I feel 'normal' 

I kid you not - I popped it on Saturday afternoon and bang - Sunday morning I woke up refreshed because I've not had hot flushes repeatedly through the night that kept me awake, I walked around Costco yesterday with only a bit at the end where I had to use the trolly as a walking aid - it wasn't pretty - I looked likeI'd been on the gin already with the wobbles and oh my was I slow 😆 but I did it. We popped to Waitrose after that and I did it again walked mostly a little trolly action at the end.

By dinner time everything ached - but then you'd expect that right it's been a good couple of years at least since I did that - and hey I earned those aches 😎

This morning I've had my physical trainer session and smashed it - especially the leg exercises which up to now I've needed up use both hands on a chair to maintain my balance - today I stood next to my office chair and rested one hand on it and did them all without a wobble.

I'm hoping that this is another step in the right direction for me, 

Roll on Thursday, lets get round 4 done and kick MS up the arse again 😎😎😎


Wednesday, 11 May 2022

Spine guy appointment done, diet update and 16 days to Ocrevus Round 4

 Time seems to whizz past so fast these days (I know thats a getting old thing)

This weekend the painter is coming back to do the final 2 rooms in the house that we didn't have done last time. Our new headboard which I swear we only ordered a couple of weeks ago (but I reality was just over 2 months ago) arrives on Friday.

I'm back in for Ocrevus round 4 on the 27th and as a pre-emptive strike my docs have prescribed some 'anti-UTI' meds so I don't fail the test again - I'm actually rather looking forward to it even though I know it's going to wipe out my Covid antibodies and T-Cell response again. Fortunately I don't seem to have the 'crap gap' that others report I just stay the same in the run up and afterwards (crosses fingers throws salt over shoulder and salutes the magpie in case I'm jinxing myself but saying that)

I had a 'day out' yesterday - well a couple of hours at the Royal Berkshire Hospital to see the spine guy. I'd mentioned that it might be related to the Facet Joint Degeneration on the right side of my spine but I'm having problems with my right hip - I demonstrated a couple of things that cause pain and weakness then he had me lay down on the exam table and asked me to lift my right leg ... damned if laid out flat the blasted thing wouldn't move. He lifted it up at aright angle then turned my lower leg inwards towards my left leg - all fine - then he rotated it outwards and bloody hell did I yelp .... loudly which was a double surprise for him - one that it went that way easily because I'm pretty flexible but the yelp hurt his ears.

He's asked for an MRI to be taken of it, he thinks the cartilage in my hip is damaged / deteriorating / knackered in addition to my back problem we know about. I can put that through BUPA at least as it's something new so back to the Rutherford Cancer Centre I go for the MRI and then probably a referral to a hip specialist.

He's really chuffed with the weight I've lost and said yes its definitely the right thing if there's a possibility I need that hip replacing and also just for life in general. 

It's over 2 years and 2 months now since home working became the norm, we get out and about again now but I think the paranoia of the last couple of years is going to take a long time to wear off, I still regard everyone walking around as plague monsters.

All in all, life is good some stuff is happening, some stuff is changing and some stuff (ms) stays the same

Stay safe and well much love from me 

xx

Wednesday, 27 April 2022

A VERY long weekend, Gareth's birthday and 'stuff'

We had 6 days off for the Easter weekend, this year Gareth's birthday fell on the Tuesday so we had an extra couple of days to enjoy ourselves.

I got Gareth a Pizza oven for his birthday, whilst I have to admit Gareth making loads of pizza's is not going to be helpful for my diet, it's made him super happy and he's produced some really lovely pizza's and garlic bread from it.

I've now had my 5th Covid vaccination - if there's microchips in them I think that I'm probably now able to communicate with the International Space Station simply by clicking my fingers, sadly I still can't just wave my hand over a chip and pin machine and say 'you have been paid' like a Jedi 😂😂

We've put telescopic draws into a couple of tall cupboards which allowed us to get rid of a load of stuff we didn't know we had and certainly didn't need and rationalise them into a 'dog & cat stuff' cupboard and a larder cupboard. We're so close to the end of the kitchen renovation now, some minor touch ups and one more kitchen counter to be refinished and we are done 

Before


After 
Larder

Dog & Cat Cupboard

In hindsight putting the dog toys on the bottom shelf was probably an error as Winston is straight in there helping himself to tennis balls every time the door is opened - little treasure 😂😂

I'm now doing 3 sessions a week with the Physical Trainer (not because I'm rich and can afford that) he's got a 6 week holiday scheduled for later this year and the 12 sessions I would have had in that time are being popped in now before then. It's helping even more for me to rebuild some strength in my arms and legs. I'm still working on my core with the sit up bench too. 

The one thing that I'm really struggling with right now though is anything that involves 'cardio' - and by cardio I actually mean anything involving e moving around - my heart rate goes crazy and my Fitbit thinks I'm doing cardio when all I'm actually doing is shuffling to the fridge to refill a glass of water. I had another fall on Good Friday and around mid day on the Saturday my heart rate was at 148 beats per minute - the Fitbit recorded a whopping 3 hours of 'in cardio exercise zone' time with me shaking like a leaf - really quite frightening while it was happening which I'm sure didn't help the heart rate one bit.

I've asked Gareth the help me get the recumbent bike set back up properly in the upstairs room so I can use that to see if I can get something like stamina going - one problem I don't know where he put the power supply for it when it was moved up there - hopefully we will locate that this evening.

In the interim I ordered myself some of the 16mg CBD capsules from CBD Brothers as an experiment to see if they will help with both my anxiety over the heart rate thing but also to help me get a better quality of sleep which I'm hoping will help with things .... they arrived on Saturday so today is day 5 on them and as I'd hoped I'm sleeping better than I was before and my mood and heart rate are far more normal now. I'm taking 2 a day, one in the morning and the other about 40 minutes before bed. So far my experiment is working 😎

I've got the spine guy appointment coming up on May 10th and then round 4 of Ocrevus at Charing Cross on May 26th (which yes is highly likely to kill anything created by vaccine number 5 😐

Oh one thing of note - I've asked both my Doctor and my Neurologist to get me scheduled for Evusheld - it's a 'pre-emptive' treatment for the immune suppressed for - yes you guessed it Covid ..... I've said if I have to drive to Edinburgh for it I'm fine with that but would they please sort it - no news yet fro either of them despite a chaser email and asking my Doctor while he did my vaccine. Watch this space.....

Apart from that all is pretty good in my world.

Hope you're taking care of you 

T
xx

Wedding things - ours and other peoples

 Quick update on life, we had out wedding anniversary over the weekend - a very lovely meal was enjoyed at the Italian in Newbury that is no...