I have been told off by the MS nurse this morning who's doing my Lemtrada because I had 2 glasses of white wine last night ... BAD TRACY - I'm feeling thoroughly chastised but not repentent if I'm honest - the other half of the bottle is in my cupboard and I haven't 'fessed up to that. My good friend JoJo is visiting later with a large stash of Mini Chedders - I'm craving salty things like mad - probably the steroids.
10:00 - Steroid drip (later this morning as they wanted a urine sample before they started - probably to check I wasn't over the limit)
11:00 - Anti-histhamine - not IV this time but it was benadryl so I'm expecting to have a pensioners nap later :-)
11:36 - Lemtrada 3 plumbed in here we go - 4 hours of the good stuff then anoher 30 minutes of th eline being flushed
15:45 - I've asked for some more paracetamol as the head spike is returning, apart from thsat it's a pretty uneventful infusion.27 minutes remaining on thi one and the anti-histhamine hasn't sent me to sleep yet :-)
15:36 - 3rd lot of Lemtrada done and flushing the lines with saline again for 30 minutes
18:00 - I lave Lem-rash .... Never thought I would feel excited to see an ugly itchy rash on my arm but I am. Applied Solarcaine and the itch was gone in about 45 seconds :-) it's still ugly but not itchy :-)
As usual I can report no symptoms or side effects other than the head spike at this time and Paracetamol is keeping that nicely under control.
Immune System will be 60% squished after this .... that means I'm officially on the winning team
Will update this as the day progresses
Happy hump day everyone, hope you have a great day xxx
It's been over 7 years since I started on my Lemtrada journey. It's a marathon not a sprint and in my case it's got a spin off show too now I'm on Ocrevus. Best decisions I could have made, no regrets, fight for yourself because you're the best person to do it This is normally updated weekly please subscribe so it will tell you when I've updated it
Wednesday, 20 May 2015
Day 3 Treatment log
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I had my first blood and urine test today, with my ms nurse, I asked about booze for you, and she said it shouldn't be a problem, so I say finish the bottle tonight Tracy and don't tell the evil nurse. Hope day 3 goes ok for you and if you start getting the rash, it's not too bad.ReplyDelete
Worrying that I had to tell this nurse to cover the infusion, that I needed Anti-H and she tells me the Ob's aren't really necessary as they did a 200 person trial in Plymouth with no Ob's .... Oh REAAALLLLYYYYReplyDelete