07:30 - 2 500mg Anadin Parcetamol as the head spike was back when I woke up :-)
08:30 - Time for Steroid Drip (30 Mins) 1g of Metilprednisolone nice early one this morning :-). Awaiting confirmation that the IV Antihistamines will be done next and the pesky Genzyme Rep to ask why the pain killers for the headache are not in the standard protocol :-)
10:30 - IV Antihistamine adminstered Chlorphenamine 10mg.
10:35 - Lemtrada plugged in 4 hours of the good stuff here goes another 20% of my immune system :-)
11:30 - Paracetamol arrived on time and head spike averted :-)
13:00 - Cyclozine (anti sickness) taken indeterminate dosage
14:30 - Lemtrada done, line flush time to get every last drop of the good stuff gets in
17:00 - More Paracetamol as the head spike was trying to make a return
Blood pressure and heart rate have been really steady and normal today where as yesterday hey were a bit up and down, but then I did put an offer in on a house yesterday (which I expected to be rejected and it was) ours goes on the market today the valuation is happening right now as I type and I'm putting another offer in later of another 10k on top of the initial offer which I'm more optimistic will be accepted. Funnily enough every time I talk about it my BP goes through the roof :-) nothing like multi tasking. I've got loads of work done today (around my post antihistamine snooze - it's good stuff)
I'm feeling really good, no fatigue no exacerbation's of current MS symptoms making it look like another relapse. The lovely Dr Halfpennny came for a visit earlier, and the nurse who's the specialist here gave me the business card of someone looking into Lemtrada as treatment for a chat - Hi Nick hope I've not bored you to tears :-)
All things considered this is amazingly uneventful and going really well, I'm almost looking forward to the rash so I can 'SEE' it working it's way through me. All that prep seems to be paying off
Good luck and much love to Lemmies everywhere xxx
It's been over 7 years since I started on my Lemtrada journey. It's a marathon not a sprint and in my case it's got a spin off show too now I'm on Ocrevus. Best decisions I could have made, no regrets, fight for yourself because you're the best person to do it This is normally updated weekly please subscribe so it will tell you when I've updated it
Tuesday, 19 May 2015
Day 2 Treatment log
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Where did all that time go?
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Fail ;-) xxDelete
Hi Tracy, it's john, finally logged in. I'm glad day 2 has gone so well, I slept heavily Tuesday night and felt ok Wednesday, but the fatigue started kicking in slowly and found it harder as days went on.ReplyDelete
Good luck finding your dream home, hopefully the right one comes along soon.
Good luck for day 3,
Day 3 underway and still feeling epic which is unusual as my last Oxygen Therapy was last Friday and I'm usually heavy limbed and achy by now with bad cog-fog. I know that the initial feeling great phase is not permanent it's a bit like a football team getting a new manager then having a couple of great wins before returning to their usual rubbish performances ... but I I'll take every good thing as a bonus ss