Hi ladies and gentlemen
This post comes to you in two parts, I'm writing this bit now at lunchtime, my appointment is in 4 1/2 hours time and to be honest no matter how well I'm doing, how great I'm feeling post Lemtrada I'm incredibly nervous about this one.
How mad is that ?
I'm doing great, I've seen such improvements to all the symptoms I've had since the 6 relapses in 6 months period of my pre-Lemtrada MS life. Why on earth would I be nervous at all, my neurologist is going to be thrilled to bits I'm doing so well, I'll be poked repeatedly with that horrid little plastic 'pointy / blunt' stick and this time I'm actually going to feel it (YAY - OUCHIES) but I'm feeling quite queasy and it's completely silly - go figure :-)
I finally got an Oxygen Therapy done on Tuesday evening, I did say I hadn't hit the wall going 2 1/2 weeks between treatments, it appears the sneaky wall gently fell gently and unnoticed on me in the intervening time, as I now feel much more like me again :-) Next one is booked for Saturday morning and every Saturday morning for the foreseeable future - better to do it and always feel great than slip gently into being an old MS lady unnoticed.
I've got a weigh in tonight - really not looking forward to that, I've said I'm starting my diet again from scratch because last week and the tail end of the previous one I just wasn't on it at all, visiting Halifax, the 16 hours of driving, wedding anniversary dinner, Battle Proms and the amazing coffee cake I made mean I did not make any diet friendly choices in that time at all :-)
The quitting smoking is coming along .... I've had the odd one here and there, but I'm no where near as bad as I was - every one I don't have is a step in the right direction and I am absolutely not doing e-cigs as an alternative.
So there we go, part one of today's update, I still feel queasy, writing it all down hasn't help me a jot, but if this helps others realise they're not alone / mad as cheese if it happens to them then it serves some good.
Love, virtual hugs, air kisses and Anti-Bacterial handshakes all round
It's been over 7 years since I started on my Lemtrada journey. It's a marathon not a sprint and in my case it's got a spin off show too now I'm on Ocrevus. Best decisions I could have made, no regrets, fight for yourself because you're the best person to do it This is normally updated weekly please subscribe so it will tell you when I've updated it
Thursday, 6 August 2015
First Neurologist appointment today - Part 1 - Before the appointment
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