Wednesday, 19 April 2017

R2Wk47 - 4 day weekends in the sunshine are awesome

First things first ……
HAPPY 2nd Birthday to The Blog ….. it actually happened over the weekend, I didn’t buy it a gift or anything (well it’s domain name renewal was confirmed) but I don’t think it will notice

It seems unreal that the blog has been going for that long, that the start of treatment was so long ago, that life has changed so much and that so much of life is just ‘normal’ as it always has been thanks to Lemtrada and the wonderful results I’ve had from having completed my treatment.

Two years relapse free, progression free, symptom free – it’s what I wanted from Lemtrada right from the start. I referred to Lem in my first post as my ‘Line in the Sand, the point I was prepared to defend from – MS had got this far and would get no more from me’

The improvements were things I hoped for but I knew were not guaranteed, but they have happened beyond my wildest dreams and remain in place today. Lem really has been my ‘magic bullet’; everything I hoped and dreamed it would be.

I know I’m very very lucky, that my response to Lemtrada has exceeded the baseline expectations, and for that I’m truly grateful. I know that only death and taxes are guaranteed in this life and as with everything in life *terms and conditions are subject to change* but if that ever happens well I’ll go to war again.

Whatever happens from here on – the sun will rise, life will continue and the updates will continue over the coming weeks, months and years to come.

So onto life stuff …..

Easter weekend here is a 4-day affair here in the UK with public holidays on the Friday and Monday which makes for a lovely long break (assuming you take advantage of this opportunity for nice rest. Of course being me; this meant I could cram about 6 days of activity into the 4 days off and get loads done.

We had the annual charity Football do up in Solihull on Saturday arranged as usual by an old school friend of mine with the young boys (the 45-year-old ‘boys’) playing the old men (the 46-year-old ‘boys’). This year it didn’t resemble the accident and emergency waiting room with lots of strained muscles and general lack of fitness injuries that was memorable from last year. Also the ‘young boys’ managed to restore some pride after being beaten last year by the ‘old men’ – they actually won – quite convincingly!

It was lovely to catch up with people that I don’t see from one year to the next. It was emotional as there was a lot of talk about my parents and brother and the past. It was also downright silly in parts with us all reliving our youth and acting like big kids. It also meant that on Sunday morning I was feeling every one of my 45 years and just a little ‘Broken’

Once we got home I spent Sunday snoozing on the sofa and recovering some energy before a day out at the football on Monday to watch Reading beat Rotherham and continue their progress towards promotion to the Premier League.

Needless to say come Tuesday ….. well I’m back at work for a well-earned rest.

MS Status
As usual it’s all terribly dull really, life remains great, no symptoms, no MS stuff, just bobbing along as normal really. I have chased up the results of my Spine MRI that was done on April Fool’s Day but not heard anything back yet – what with the Easter holidays and Europe seeming to be on holiday for 2 weeks I suspect next week I might hear something, fingers crossed that no news is good news.

And Finally
It’s Gareth’s birthday today, we are off out tonight for Epic 2** Michelin food which is most definitely NOT on the diet plan and I can’t wait.

Life is awesome, love and germ free virtual hugs xxx

No comments:

Post a Comment

Where did all that time go?

 Good grief I turn round and it's been 5 months since I put an update on here. I'm sorry about that I guess first things first - tha...