In a
spectacularly epic fail I have managed to pick up Gareth’s Man Flu, I’m usually
so good at not picking these things up but my germy plague monster husband has
infected me. To say I’m not impressed is the understatement of the century and
just as soon as my sinus’ re clear, I’m not sneezing or coughing I’m going to
get my revenge on him. I swapped out Saturdays’ Oxygen Therapy in the HBOT tank
for a Tuesday night ‘chair’ session which doesn’t involve being pressurised so
for those of you with Tinnitus or other ear problem who don’t want to risk HBOT
this is another option for you, just an oxygen tank, a mask and a comfy chair
My body will only absorb about 60% of what it normally would but it is better
than nothing.
My physio sessions
have been going well, the impinged nerve and tennis elbow are now resolved, the
only remaining thing to fix is the damaged ‘rotator cuff’ injury which I
managed to acquire falling down the stairs the other week.
I’ve had a
text from my MS nurse regarding the date for round 2 of Lemtrada saying I’m
booked for May 18th again at Hotel Southampton. I guess it will be
the same as last time I’ll have to confirm everything again on the actual day
that there’s still a bed available for me. I have already asked if there will
be more tests again this time and am waiting for an answer. The test from last
time were 8 vials of blood for a number of reasons (including the AIDS test)
urine samples to check I’m still not pregnant, chest x-ray to check I’ve still
not got TB, MRI is already done unless they decide they want another and I’m
REALLY hoping there’s no need for a Lumbar Puncture, or another smear for the
second year in a row (women really don’t get to have any pride for these
things)
We had another
lovely quiet weekend as a prelude for the Easter Weekend, we’re off up to Wales
to see Aunty Kathy with the dogs, we’re going to have our Christmas present
from Kathy, the ‘Chef’s Table’ at the Michellin Starred Ynysir Hall, Looking
forward very much to having a catch up, taking the dogs on lovely walks and just
chilling out for a few days.
My March
blood results are back and my lymphocytes seem to have stagnated a bit,
presumably because they were rebalancing after my cold – so this month they
stayed the same again BOOO – sort your lives out lymphocytes my team aren’t
concerned about it though so I’m not going to dwell on it.
So what
else is happening…..
I’ve gotten
quite introspective of late, thinking about what I want out of life and my
priorities right now. The sun is shining and it’s a beautiful day. Why am I
sitting in an office looking out at the sunshine when I would rather be out in
it? After all Vitamin D is great for people with MS surely I should be taking
my free top up while it’s on offer? Well there’s the matter of money which is
highly important, and stability also highly important. More I need to think
about round 2 coming up how it might affect me (I might not get off scott free
on round 2 with the fatigue etc) and there’s the money, oh yes and there’s the
money. Sod it I’ve bought a lotto ticket for tonight’s Euro million’s it’s
probably my best hope.
On the
bright side the England Rugby Team not only managed to win the Six Nations, we
did the Grand Slam too by winning it unbeaten. It made me feel so very proud of
the team after the abysmal performance in the World Cup.
I watched
the match through a never ending stream of tears, my family has always been
great fans of Rugby Union, I even played on a boys team when I was a child
(until they realised there was a girl on the pitch when I was 12/13 years old –
boys are quite slow) To not be able to celebrate with my parents or my brother
such a momentous win was just so painful and I suspect it’s always going to be
that way.
Everything
is good though MS wise – bring on round two and lets kick MS in the nuts a
second time
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