It's true - I am a revolting germy plague monster. It's all Gareth's fault, he has been self moderating by sleeping in the spare room since last Wednesday and full of cold but despite all precautions has managed to give me his plague.
I woke up on Saturday morning and my first thought was 'bugger' - Nice Michelin Starred Dinner planned for L'Ortolan and my taste buds are offline - well that's just not nice.
Oxygen was not going to happen, it's in my head, my sinus's, my ears, putting all that pressure 'under pressure' would have been rather unpleasant.to say the least (if you think your ears can get sore on take-off and landing on a plane, it has nothing to how much it can hurt at 33ft pressure in a hypobaric chamber) plus there was the whole feeling like death warmed over to contend with. So I sat on the sofa in my dressing gown wrapped up in a fluffy blankie and felt suitable sorry for myself.
Dinner at L'Ortolan wit our friends was lovely as a party of 12 they had put us in a private room (presumably to protect the rest of their diners from a large party of people all wearing black tie) Unfortunately my taste buds were offline mostly so very little of the beautiful flavour got through properly apart from the Wasabi on the mackerel course,
Our allotment now has a nice big compost pallet arrangement to dispose of weeds (and there are a lot to deal with) but quite honestly I really couldn't be bothered to be doing with that level of effort when I felt crappy despite feeling better being out in the fresh air.
I had my monthly bloods last Friday with the lovely one stab wonder nurse at my doctors surgery. Actually that reminds me - my bladder went on strike and I failed to provide a pee sample on Friday and I still have not dropped the bottle back to them to send off to the lab - must do that later today. Obviously my bloods are going to be all over the place this month with fighting infection so I'm not going to get all bent out of shape about it.
This month is my 29th set of bloods .... EEEK .... next month will officially be the half way point in my 5 years of blood tests. There is a strange feeling of achievement that comes with that realisation - I'm halfway home. It's been 2 1/2 years since I started this journey - how did that happen - I've made it up the mountain and now just need to get back down the other side - note to self do no refer to this as 'it's all downhill from here' LOL.
I feel like I should arrange a half way there event for next month in honour of this - I've never done a video or 'VLOG' as the cool kids refer to it - perhaps I can get over my camera shyness and do one for next month - perhaps enlist Gareth's help in making one of those happen - I'm sure he can work the YouTube thing. I guess then you'll all get to see my lovely new dark auburn winter hair and discover that I am a real live person and that yes I'm just this weird and 'yappy' in real life too.
Anyway after popping back and forth it was finally 13:00 and I could get my blood results so here we go for month 29
It's been over 7 years since I started on my Lemtrada journey. It's a marathon not a sprint and in my case it's got a spin off show too now I'm on Ocrevus. Best decisions I could have made, no regrets, fight for yourself because you're the best person to do it This is normally updated weekly please subscribe so it will tell you when I've updated it
Monday, 23 October 2017
1y 21wks post Round 2 - I AM THE PLAGUE QUEEN - Month 29 blood results
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