So my 4th round of ocrevus has moved forward to Thursday next week, all but 1 of the required bloods have been done (the Lymphocyte Subset levels can't be done locally but have been agreed to be done on the day by the charing cross MS Nurse team) It's also been agreed that this time I can have it without the steroid 'starter' ...... the steroids have always hit me hard, they mess with my bodies temperature control for weeks and on top of my Menopause hot flushes thats was going to be an absolute nightmare - so this time I'll be taking my shot of Ocrevus neat 😎
I've had an MRI this week on my hip thanks to the Spine guy and hope to have news on that soon.
The next thing its HRT - OMFG - miraculous stuff - slap a magic Conti patch on my arse and suddenly I'm human again - I have energy I feel 'normal'
I kid you not - I popped it on Saturday afternoon and bang - Sunday morning I woke up refreshed because I've not had hot flushes repeatedly through the night that kept me awake, I walked around Costco yesterday with only a bit at the end where I had to use the trolly as a walking aid - it wasn't pretty - I looked likeI'd been on the gin already with the wobbles and oh my was I slow 😆 but I did it. We popped to Waitrose after that and I did it again walked mostly a little trolly action at the end.
By dinner time everything ached - but then you'd expect that right it's been a good couple of years at least since I did that - and hey I earned those aches 😎
This morning I've had my physical trainer session and smashed it - especially the leg exercises which up to now I've needed up use both hands on a chair to maintain my balance - today I stood next to my office chair and rested one hand on it and did them all without a wobble.
I'm hoping that this is another step in the right direction for me,
Roll on Thursday, lets get round 4 done and kick MS up the arse again 😎😎😎
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