Wednesday 7 April 2021

I 'got out' this week

 It's been 5 months since I have been able to see Claire what with lockdown 2 and the Covid situation.

It took weeks of planning between us to just arrange a day where we could get together in her garden and catch up with yummy food but we did it.


Easter Sunday was so much fun, the 3 acquired sisters together again. The sun was shining, we had an amazing 'grazing box' of nibbles and mint chocolate Aero tiffin. We were able to sit out in the sunshine (once Melly and I had built the most complicated set of garden furniture in the world) Claires beagles spent the afternoon zooming around the garden with next doors Labrador puppy (which is huge and has minimal coordination as puppies do) 

It was wonderful and emotional and Claire's cancers are not being kind - it feels so much like we've been robbed of precious time with her for the last 5 months and we now have to find a way to make up for what we've lost and make sure that whatever is coming she has fun and hugs and love to make up for what we've lost.

Gareth and I did an amazing lamb leg dinner on the BBQ and then as I often do I fell asleep on the sofa 😂😂

The 3 day week last week was lovely and a 4 day one this week equally so.

5 weeks left until we have our week away for out holiday and 7 weeks until Ocrevus round 2.

April brings an awesome month of spoiling ourselves with lovely food

this month we have the following scheduled 

April 10th -

April 19th - (this is for Gareth's birthday

April 30th -

April fine dining sorted even if we aren't allowed out 😎

The pubs open here again (for outside drinks and dining) on April 14th so hopefully we can just get out together for a couple of hours with the dogs and do something (anything) different.

MS wise nothing is different, the good side really - I have a telephone appointment with the Neurologist team next Monday where I will be told the long awaited MRI results (which I've seen online and are happily unchanged once again)

08/01/2021 MRI Head :
08/01/2021 MRI Spine cervical
Clinical History

RRMS on ocrelizumab treatment to r/o new activity in view of DMT monitoring


In comparison to previous imaging of 1 year ago there are no new lesions seen within the brain or cervical cord. No evidence of PML or any second pathology.

Conclusions: Stable appearances

I guess they'll want to talk about how things have been since December and the last Ocrevus infusion - perhaps any 'pre-treatment' tests before the next infusion on May 27th

I'm also hoping that in the coming weeks we will get to see Gareths Mum and Dad when they're allowed to visit inside the home - first stop will be Gareths grandmother naturally but hopefully a quick stop with us on the way home again.

Hope you're taking care of you and yours xx

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