Thursday, 5 September 2019
4yrs 3mths 1wk - Reflections and blood results
The morning after the weeks before
This week has felt really strange, after the stress and worry of the possibility of bad things, the relief of the bad things being counted out, holiday and countless other minor things I’ve felt a little directionless as to what I should be doing.If I’m not fighting something, organising something or avoiding something, well what should I actually be doing? The possibilities are endless and randomly my mind is blank apart from the little voice in my head saying ‘there’s a pile of clean laundry at home that needs to be put away’ ….. Hardly exciting is it?
It’s mid week, the weekend is coming and again there’s a blank space, nothing planned, just a space where ‘stuff’ can happen but I genuinely have no idea what ‘stuff’ that will be and no ideas as to what I even want to do. There are some blocks to what is feasible while we are still working with Winston on his insecurity, but we are actually getting somewhere with that now. Gareth and I are both applying some good practice to our interactions with all the dogs and it seems to be paying dividends quickly.So I guess that’s the weekend plan – going over repeatedly the lessons with the dogs reinforcing over and over again the lessons that need to be learnt. I’m sure by the end of the weekend we’re going to be quite mad but the dogs I’m sure will be much happy with their humans. I’ll update on that as we go.
It’s also getting to that stage where I should probably start thinking about the ‘C’ word – not the bad health one, Christmas ….. good grief how on earth did it get round to even close to that time of year again. I’ve said it before but goodness knows time seems to speed up the older you get, birthdays and Christmas’s feel like they happen so much closer together.I guess it doesn’t help that having been so crap at planning in the past I’m trying harder to be less crap by starting the preparation earlier, this is adding to the ‘things coming around faster’ feeling because I’m ‘getting into it’ sooner. I’m really not helping myself am I LOL
Amber couldn’t get up this morning, she had stronger tremors that she’s had recently and couldn’t get up. Gareth had to get up and carry her down the stairs. By the time she was downstairs she seemed to have got herself together and wobbled off down the garden to get things done. I’ll keep an eye on her and see how she does, but it’s always there in my head that her time seems to be getting short. This is probably reinforced by having overheard our neighbour find one of their rabbits had passed away in the hutch during the day – simply awful to hear how heartbroken they were and the little voice in my head saying ‘you’re next’.Perhaps that’s another reason why I feel a little directionless right now – I’m waiting for the hammer to fall. It seems like a long time since there’s been nothing to do except just live my life and without something to focus on perhaps I just genuinely don’t have a clue how to just ‘do’ life these days.
That sounds quite depressing, but honestly it isn’t that way at all. I’m enjoying life and love and happiness. Bob’s in the car, his battery has been flat since last weekend and I haven’t needed him for anything I’ve wanted to do. That the training is paying dividends is rewarding and it gives me hope that we can have the dogs out with us for more positive experiences and worry less when we want to go out. Gareth and I are enjoying our time together and it’s stress free and happy. I’m looking forward to the end of the year and seeing our family and catching up with everyone and hoping that I get gift choices right for everyone and that we have a lovely time together.Perhaps it’s just that I’m not used to normal anymore and need to learn how to do ‘normal’ again.
I’m not always focused on how to ‘live my MS life’ anymore. Yes I have MS, that’s not going to change any time soon and although I wish there was a magic ‘fix it’ button it doesn’t dictate things these days so it’s not overly intrusive. It isn’t ‘me’ though.Its getting harder to update the blog simply because there’s no MS news, it just is …… I feel like this has become a strange online diary of a person who happens to have MS and less helpful for people reading it. I wonder what I’m actually contributing these days other than an enormous feeling of wellbeing to those reading that at least their lives aren’t as mundane as mine is and genuinely wonder why people read it (unless it’s helping with insomnia on which case enjoy your snooze because this one is quite likely to send you into a deep sleep)
Anyway in other news …. Monthly bloods have reflected something that Dr N pointed out to me about those blood results being too high. Both he and my GP had said that the root cause could be related to smoking. His blood results and my most recent monthly ones both show an improvement pattern which reflects their comments. Having not smoked (much) before tests one of the readings has dropped (barely) into the normal range and the other is coming back inline. My thyroid has dropped into the low end, but I suspect that might have something to do with missing dose of meds while I was on holiday – it only takes one missed dose for it to nosedive and 2-3 weeks to get it back to where it should be.So here we go a little later than normal because I was away, here are my August results.
Stay well and enjoy life xxx
Quick update on life, we had out wedding anniversary over the weekend - a very lovely meal was enjoyed at the Italian in Newbury that is no...
Apologies for the absence, a lot has happened, but also not a lot if you know what I mean. My back procedure was last Monday, very uneventfu...
3 weeks have boomed by again, sorry about that. So what's new in the Doust house ? Well I logged into my banking app on Saturday to pay...
I had my 3rd round of Ocrevus last Thursday, they did the fast infusion and everything was very uneventful really. I had a nice long snooze ...