Wednesday, 5 February 2025

Still here just really rubbish at updates

 I'd apologise and make promises but let's face it you're sick of that by now and know it's all hot air - I am sorry and I am going to try harder to keep this updated.

So where did that last 6 months go?

Well Christmas was lovely - we did it 'home alone' style for only the 2nd time in 16 years and oh boy was it a relief not to have to do all the driving, sleeping in different beds and trying to keep the dogs happy when they don't have secure access to a garden with grass for the necessary 'ablution's' 

The Crohns thing is being 'managed' mostly with the use of co-codamol which I need anyway for pain management but has the handy side effect of blocking you up but with Crohns it just keeps things normal.

I had a 'funny turn' in the heat during the summer - overheated and blacked out here at home so I had some heart monitoring done. Apparently I have an 'ectopic heartbeat' I've probably always had it and its never been noticed but fortunately the propranolol I take for anxiety works for that too so no extra drugs YAY 

MS wise - well everything is bobbing along, I have my mobility challenges, sensory ones (that numb left hand still drives me nuts) I'm trying to do more exercise to build up my overall strength and fitness with varying degrees of success but I keep trying.

I'm due another dose of Ocrevus next month (the timing has changed as they delayed the one in May last year by 3 months when Crohns was diagnosed because I was on a 3 month steroid program and they didn't want me turning into the Hulk with added IV sudomedrol) As usual I'm quite looking forward to it all because it's really no bother at all apart from the super early drive into central London.

Winston had a horrible accident on New Years Eve - the dogs went racing into the garden at top speed and bumped into each other - he used his face as a brake by smashing into one of the railway sleeper planters we have. Blood everywhere we were terrified he'd broken bones in his little face and might lose his left eye but fortunately after racing to the emergency out of hours vets and a 'wallet-ectomy' (£380 just to walk in the door - thank goodness for insurance) we were told it was all superficial and apart from some interesting scars and a thumping headache he'd be fine.

Life just goes on and we do our best don't we,

Anyway I'll stop wittering now and try harder going forwards

Much love from me 

Still here just really rubbish at updates

 I'd apologise and make promises but let's face it you're sick of that by now and know it's all hot air - I am sorry and I a...