Another improvements to report ladies and gents, I'm not sure quite how I missed putting this in here earlier.
The bowel / bladder urgency that had made it so very terrifying to realise I needed the bathroom has calmed right down. Perhaps it's related to the recovery of some sensation in the trunk of my body but damn does it feel good to know I'm going to need to go soon rather than that awful claxon in my head screaming 'GO NOW - YOU'RE GOING TO HAVE AN ACCIDENT ANY SECOND' or even worse - the need to pass wind (okay mine smell like roses - all women's do) and to not know if it's just gas or an accident waiting to happen, it's quite liberating to realise I'm going to fart and just worry is it going to be a 'silent but deadly' or is it going to be a 'thunderclap' one that makes everyone turn and stare at you.
I was talking to another MS'er this afternoon who told me if I was going to Steroid Crash it would have happened by now and I'm probably going to be okay - jury's out, I'll probably start believing that around the 3 month mark if I'm honest.
First set of my monthly bloods and pee samples being done on Friday morning. I'm not entirely sure how that is all reported back to me, but when I get them I will be publishing them on here, and hopefully get the lovely Emma to give me the 'laymans terms' of what it all means and why.
Pinched this from someone's facebook feed, it sums up my feeling about what I hope this blog can achieve, hope you enjoy xx
If it doesn't inspire you ............
So very true ...
It's been over 9 years since I started my Lemtrada journey it's a marathon not a sprint and in my case it's got a spin off show too now I'm on Ocrevus. Best decisions I could have made, no regrets, fight for yourself because you're the best person to do it This is normally updated weekly please subscribe so it will tell you when I've updated it
Subscribe to:
Post Comments (Atom)
Life MS and other things.
I have no excuse thats worth trying, I'm not going to make any promises that are likely to come to nothing - I've just gotten reall...
-
Something I've noticed in the last couple of weeks is that not only am I wearing shoes with a 2 inch heel on them, but also that my now ...
-
Apologies for the absence, a lot has happened, but also not a lot if you know what I mean. My back procedure was last Monday, very uneventfu...
-
Good grief I turn round and it's been 5 months since I put an update on here. I'm sorry about that I guess first things first - tha...
No comments:
Post a Comment