Wednesday, 30 August 2017

1 year 13 weeks post R2 - ARGH - I am SOOO Sorry

I swear that I remember writing an update two weeks ago and publishing it but apparently I didn't. The same with last week - I wrote it and left it on here in draft form and never hit the publish button.


Probably just as well really, it was rather dull and a bit whiney given that the weather here for the last 2 weeks has been damp with a side of damp and for dessert .... more damp.


Well the sun is shining, the washing is out on the line, my home office is all set up so I can work comfortably from home. Winston is being super cute snuggled up on the armchair with a great big teddy bear that belonged to my mum.


We've just finished a 3 day bank holiday weekend and whilst the weekend is supposed to be for resting we seem to have done loads, gardening, dog walking, shopping, late nights, early mornings (why oh why do I wake faithfully at 06:30am on a weekend when I went to bed at 2am but on a school night when I went to bed at 23:00 I'm having to claw my eyes open and drag myself out of bed)


I ended up having to use a mobility scooter to get myself around the big Tesco's at Camberley... well when I say use ... I got to between aisles 16 and 18 - near as dannit the furthest point from the door and the battery on the damn thing died ..... amazing how despite my energy being gone along with my balance and the feeling in my legs - I made it back to the counter as mad as hell and then gave them hell.


I'm looking forward to the weekend with the In Laws coming for a visit and a day out with Boy in Sunday.


Blood tests tomorrow for 3 months post round 2 so proper update early next week


Again apologies, life is going at a million miles an hour right now and I promise to do better xxx

Tuesday, 8 August 2017

1 year 10 weeks post R2 - fat birds shouldn't trampoline


Apologies for the week’s absence, real life certainly intervened in normal services.

The monsoon and leaky conservatory roof has meant that we’ve had to order a full on replacement for the conservatory. Unfortunately, just replacing the roof on top of the 15-year-old wooden structure wasn’t feasible as it wasn’t really possible to provide any meaningful warranty so we’ve had to bite the bullet.

I guess they say everything happens for a reason, at least we aren’t having to borrow to get the work done. ‘Play the glad game’ is a saying drummed into me my whole life by my parents. Rather than dwelling on what is negative / sad / disheartening to remind yourself of the things you are glad of or for.

It has always been my motto – perhaps one of the reasons why I’m glad being diagnosed happened when it did – because I’m glad that it was at a time when I could fight back.

I took Boy to Gravity Force on Sunday …… A trampoline park …..

You’d think trampoline-ing – bouncing up and down in one place on something soft and squishy would be pretty much minimum effort and low impact. A few short minutes and my legs were jelly, my backside felt like Gareth Bale had been using it as a target for penalty kicks. I woke up yesterday morning and I didn’t hurt, I’d just seized up like old brake pads in need of some WD40 and good rub down with the sporting life (as my Dad used to say)

All I can say is I’m horrified about how out of shape I am – I must start to do something about that because walking the dogs just isn’t cutting it. Another project for me to plan and deliver along with finding a great role that will stretch my mind.

Another 10 days or so and its monthly blood test time again. With my Lymphocytes back in the low end of normal it feels quite odd that there’s a little voice in my head saying ‘I with the damn things would bugger off again’ life without them has been awesome and who needs a fully functioning immune system anyway – highly over-rated in my opinion.

Life is awesome, I now have a home office to work in with a nice desk and the MAC up and running and fully up to date thanks to Gareth …. (I can do it but would prefer not too - project manager – not desktop support LOL)

Once again apologies for missing a week of updates, this one isn’t really very long, but I’ll openly admit I’m also watching Animal Rescue Live on Channel 4 and I’ve had to stop a couple of times to go and get a tissue hearing some of these lovely animals stories (a boy surrendering his pet dog and a pair of bunny rabbits where one is blind and the other cares for it) I’m such a big soft baby watching animal thing.

So take care of yourselves and each other, much love from me xxx