Thursday, 10 September 2020

The broken toe video

It's taken a couple of days to get this done, 4 attempts to record it with my Mac crashing randomly part way through (although you may be relieved to know that the result is that this one is VERY short)
Ohh and I finally got my hair professionally trimmed and sorted so I no longer look quite to much like Grizzly Adams slightly more feral older sister :-)

Tuesday, 8 September 2020

How many broken bones can you have at once

Apologies for the absence, if you've seen the vLog then you'll know about one of my broken bones, but not the 2nd.
It's been a strange old few weeks, first I managed to break the scaphoid bone in my right wrist in a 'falling down and putting my hand out to stop myself hurting myself' incident which made typing incredibly hard. A week later I managed to catch my little toe on my right foot navigating round the furniture barefoot at home and not only break a bit off the end of it, but dislocate the knuckle in the middle of it too.
All things considered the last few weeks have involved much swearing, crying and general frustration at how bloody hard everything suddenly became having lost my ability to actually do pretty much anything without extreme discomfort and risk of hurting myself again
I ended up at the Royal Berks injury unit and saw the same lovely nurse both times - she has now warned me that this coming Sunday is her last on this rotation and if I'm going to break something else perhaps I should take her chocolate and flowers so it feels more like a real 'date' LOL
I've been up to the Royal Berks today for another wrist X-Ray and this time there were people there at the X-Ray department which was quite strange as the previous visits it's been like waking up 28 days later with me being the only person moving around the hospital. It's all very safe though, very carefully managed and organised so nothing to be afraid of s long as you practice distancing, great hygiene (which we're all very experienced at) and wear a mask.
So hows everything going MS wise ? It's all very much the same if I'm honest, nothing has noticeably got better or worse which is a good thing, lets face it 'beige days' are always a good thing with MS when something else didn't stop working properly.
I've had my blood tests for Ocvrevus. another Neurologist appointment (which might have been in error since it happened on the day when it was supposedly cancelled from) apparently my next contact will be for going in to have the first part of the first treatment (the first Ocvrevus infusion is split into 2 parts 2 weeks apart) - I guess the last few weeks of broken things have very much given me confidence in going in for it so that's a good thing.
Gareth is now going back into work a few days a week, it seems to really make a difference for him, having human contact other than me.
I can go back in to work again if I want to, it's voluntary not mandatory - I have to book a desk in advance to make sure we aren't all coming on at the same time - so if you need to go in and the available and distanced desks are full it will deny you access - I suspect it will be many months before that actually happens. Of course right now I can't even get Bob out of the car let alone back into it so that's not happening for a while yet unless I can plan some 'muscle' to assist. I think when I do it's going to be a welcome change.
I bought myself a recumbent cycle a few weeks back so that I could do some exercise, build some strength hopefully lose some weight and get more fit without actually causing more problems with my middle aged arthritic knees which I really enjoy using - right up to the time I broke my toe - right now the thought of using it terrifies me somewhat but when my toe is better I'll be back on it.
The dogs are still loving that they're never left and we're working on trying to get them used to that again. They're loving that Michelle walks them now rather than just playtime in the garden though.

So I'm popping up another video today to explain the 2nd break on the vLog but here's the last one for you to have a giggle at.

Stay safe and take care
Much Love

Wednesday, 5 August 2020

It's be a long old few weeks

Hair update - I'm no longer pink or silver or a strange combination of pink & silver which came out electric lilac

Just Ash Blonde now albeit significantly longer than when all this Covid Lockdown stuff started and I finally dared to 'come out' in a video.

Can't quite get my head around how 5 months have just disappeared from the year it seems like such a short time overall, but it obviously isn't and has been incredibly hard and has taken such a toll on so many people, lives and families.

Anyway here we go scary movie time (it's just a short one)

Bad Bad Bad Tracy - Neurologist appointment and Wedding Anniversary

First things first

Profuse apologies for 4 weeks of no updates. I'd say I was busy or out or doing something terribly exciting ...... but lets face it, if I said something like that, you'd assume my account had been hacked because my lack of exciting life is simply a fact of my boring life.

So last week was our wedding anniversary - 9 years and we're both still alive, not in prison and haven't recently had a patio re-laid :) (MANY years ago, there was an English TV show called Brookside where the husband ended up buried under the patio - hope this helps if you're not from the UK or even if you are and aren't ancient)

We had a long leisurely lunch at the Hand And Flowers in Marlow (as usual - I know but we love it there) did a couple of errands on the way home without stress because we had a lovely lady here keeping the dogs company. Four continuous days off though did make for only 2 'constructive' days because the other 2 were horrid hangover days.

I had an email last week telling me my neurologist appointment at the end of the month had been brought forward to August 5th at 10:30am .... it optimistically asked me to go to St Mary's in London for the appointment which I sceptically thought 'okay yeah lets see' to upon reading, naturally 2 days ago I got the follow up Text Message saying 'under no circumstances try to attend in person - stay home we'll call you'

This morning at 10:30 on the dot ... ring ring ... lovely lady to make the preliminary arrangements for Ocrevus .... I'm getting an email later so I can book my bloods - I really do have to go to St Mary's for that - then once the results are back next call will be telling me when I go to Charing Cross for infusions.

I'm quite excited that it's actually going to happen - something to address the PIRA I'm experiencing despite Lemtrada working perfectly to stop the active disease the old stuff started bubbling again and needs a slap

The wonderful MS Doc Aaron Boster describes it so much better than I can - I've dropped him a DM on Twitter asking for permission to share his video's but didn't hear back - Dr B if you're reading this -- sorry and hope you don't mind xxx

I'm having a bit of a 'resurgence' right now, the arthritis pain in my knees had got to the point where I didn't know what to do with myself so I've gone up to 4 of those monster turmeric tablets each day, a huge dose of Glucosamine and a separate huge dose of Chondroitin - the inflammation and pain levels are reducing, today I decided not to take a pain killer this morning and so far that's been the right decision

Kick Arse

The dogs are still loving the humans working from home - it will have been 5 months on the 9th of this month since the decision to come home and stay home was made. We're working on building up time away from them now so that 'when' we go back it's easier for them.

So that's me

Apologies for the absences, I'll try not to be so rubbish

Hope you're having good days and better days

Today is definitely a better day xxx

Tuesday, 7 July 2020

Grey hair - the movie

Here it is what my dad would laugh himself silly at - 25 years of covering up the grey hairs and I've coloured the bloody lot grey 😎

Monday, 6 July 2020

5yrs 1mth 2 wks - Silver hair and aircon

The thing about working from home in lockdown is that my new office location in the extension has lots of windows which the sun streams through each morning, it's glorious and please don't think I'm having a whinge about sunshine and good weather, I'm not at all (despite being British which of course means moaning about weather is a requirement for nationality) I have this tiny little Aircon unit that sits on my desk blowing cold air at me from 8am until 10am when the sun moves over the roofline. It does make me fee slightly more charitably towards the people who did climate control in the offices at work ... I struggle to maintain a nice temperature in the extension, they were trying to do it over 4 floors with 60+ meeting rooms and a massive floor to ceiling atrium - I think they need more credit.

The Olia Rose Gold in my hair that added the pink 'Bagpuss' look had faded out quite a lot so I decided to give Silver a try, now bear in mind it was going over a mixture of blond and pink which funnily enough it's on the samples on the side of the box so it was always going to be a bit of a gamble.

It's actually come out really nicely, it's sort of a blend of silver, metallic lilac, some gold streaks and some darker more grey shades all streaked together - it looks great but there's a little 'deja vu' with it too, that thing where you're watching something on the TV and the 'age up' one of the characters by greying the hair .... It's a little like looking into a mirror thats ages - 'heres what 60 might look like' with a 48 year old face in the middle.

Today it's been 17 years since I lost my Dad, such a long time ago, but today it feels like yesterday. I feel sad, but I'm used to it now, a few tears and getting on with it is the order of the day. He'd look ay my hair and laugh himself silly whilst calling me a 'stupid bloody woman' because he'd find it hilarious that after 25 years of ruthlessly dying over the white hairs that I've voluntarily gone silver all over so my whole head is what he would call it exactly what it is ..... OLD PEOPLE GREY ..... LOL

The pubs and restaurants have reopened over the weekend here in the UK (with Social Distancing in place) it's not something that I've felt the need to participate in - yet - I'm not terribly bothered about the pubs if I'm honest, going out for a meal however is something we've really missed. I've had a table booked at The Hand & Flowers for our wedding anniversary for a number of months so that may well be our first dip back into 'normality'.

I had a dip back into watching Channel 4's GreenWing last night, it's been a long time since I first saw it and I guess I'd forgotten just how very strange and messed up it is - hilarious, but it's honestly like watching someone else very strange 'trip' - or at least what I imagine doing that would feel like. My perspective on some of the main characters has changed greatly from when I first watched it, what was once charming and endearing is now sneaky and opportunistic. I think this might be interesting to watch again in 10 years time to see if my perspective has changed again.

Gareth's on a training course this week (online) I'm doing my 'thang' and we have a dog trainer booked for tomorrow evening (again) all go here this week (not)

Take care of yourself and each other xx

Friday, 19 June 2020

5yrs & a month

Does anyone know where the year has gone so far ?

I'm starting to lose track of time I think, my once a week 'trip out' to Costco for 16 litres of diet cola and then a quick whizz round Sainsbury's for the shopping seems to mark the passage of time, those Saturday excursions are really the most exciting thing I do now.

It's Monday today so I've worked from home office again - actually I've not done a video from my new location so I might make time to do one tomorrow, hopefully it will be sunny and lovely but right now it grey and windy and absolutely lashing it down outside so I'll wait.

The dogs are still loving this life where the humans are always around to keep them entertained, Murphy cat is getting braver about coming in the house when the dogs are around but his cowardly streak is still very wide.

I've re-done my pink hair, and where it was only lightened last time and was a bit of a 'dipped' look is now properly pink.

It's Friday again, so tonight is poker night with the lads - I managed a respectable 2nd place again last week (vast improvement on the week before where I think I was first or second out) Football is also back here in the UK and tonight Gareth's beloved Tottenham Hotspur are playing Man United (not sure that's going to have a happy ending but on a bright note he's going to properly distracted playing poker so that can only be a good thing)

This weekend will be the usual lot of nothing terribly exciting I suspect but that's okay, there's a rumour going round that the weather is improving again which will be lovely - it's been quite grim for the last week or so.

I hope you're staying safe and sane.

Much love T xx

More video stuff if you're that way inclined - including my change of venue