Tuesday, 15 June 2021

Finally able to see Friends & Family (Epic) Middle Aged Menopause and heat (not so epic)


Good grief but I'm British and getting old

The temperature pops over 20 degrees and my ankles have swollen up, I'm sweating like Jimmy Carr in the tax office (apologies to those not familiar with the English tax avoiding comedian) 

It's been so glorious here all week, the BBQ's have both been used many times and Sunday it was finally time for us to reconnect with the friends we haven't seen in person for 18 months.

Preparations for meeting: 

  • We have all had at least 1 vaccination (me both) 
  • we all did lateral flow Covid tests that morning, all negative. 
  • We elbow bumped, 
  • we all stayed out in the garden in the fresh air
  • we stayed 1 metre apart 
and it was wonderful (the not hugging each other was hard but we were good)

It felt so damn normal and we've all missed it so much 

What else ...... you know what it all doesn't matter.

We have Gareth's mum and Dad coming this weekend - he hasn't seen them in person since the Christmas before last so that's going to really emotional and we will manage with the same preps as last weekend - gotta stay out in the air and keep our hands to ourselves.

I can cope with that - I'm happy with that 

Steroids from round 2 of O are now out of my system I think and life is great.

Hope you're having some awesomeness of your own 



Tuesday, 1 June 2021

Holiday, another round of O, sunshine and the great outside

 We completed everything on that massive list.

Our week away in Watchet was lovely, the weather held (mostly) and we got to eat cake at Houndville with our friends who own the house we stayed in. Bella learnt that she's not always the fastest dog in the park when their saluki/collie cross left her in the dust at zoomies 

Gareth got the Ox-AZ vaccine before we left and it was okay, bit sniffly on the following day, lots of water and a paracetamol sorted him out.

My car no longer has the scratches that Gareth put down the side of it and thanks to the valet guy no longer smells of dog and is sparkly and clean.

I had round 2 of Ocrevus last week and smashed it. For once the sight of the blood pressure machine didn't make it go through the roof, I managed to pee on command into the teenie tiny pot and I was home before 4:30 (I've never managed to leave there before 5pm so being able to get home at a respectable time was awesome)

I've had my 2nd week of oxygen at pressure and oh boy does it make a huge difference to everything.

I even managed to walk around Costco at the weekend - I got quite emotional when we got back to the car. It's been so long since that was possible and it could just be the steroid effects but thats okay, I did it and if I build up some strength this might become the norm again.

We got out for dinner over the long weekend at a lovely restaurant near home, it felt 'real' and 'normal' to be inside a restaurant with other people, yes the staff were all wearing masks and there were some rules in place but good grief it was a joy to do it. 

I'm also ramping up activities to get the en-suite sorted out so that I don't have to play 'will I fall and kill myself trying to get in and out of the bath' in the other bathroom for a shower - a game I do not enjoy.

Got to get Gareth up in the loft too, there's a leak up there somewhere dripping onto the bathroom ceiling in the other bathroom (possibly need to replace the boiler - which will be a massive ouchie if it needs to be done)

The sun has come out here in Berkshire and it's glorious the BBQ has been used a couple of times this week to great results (Tomohawk steak and piri piri chicken) and more to come later in the week.

Loving life right now. Hope you're well 


Tuesday, 11 May 2021

The great bunny rabbit rescue and a mad month of stuff

 That list I published of the bedlam that is this month is getting longer by the day - I'm adding to it not reducing it in any way

03/05 - Having a back, neck and shoulder massage and she's going to do some work on my legs too

11/05 - Blood Test  to check up on my naughty thyroid's current state of play. 

07/05 - Oxygen treatment 

10/05 - Winston in surgery to remove the infected tooth that has been causing him problems

11/05 - Car being collected by the bodywork people to fix the damage where Gareth scraped it down a fence - this may be finished today or possibly tomorrow

12/05 - Gareth is booked for his first Covid Vaccine (okay it's not me but it's exciting that his number has been called)

14/05 - Off to Watchet for a week long holiday

15/05 - Meeting Tim and Lisa and their dogs for zoomies and probably dinner later at the house in Watchet (which is actually their house) 

22/05 - Oxygen treatment - INSIDE & PRESSURISED - oh my but I'm looking forward to this 

24/05 - Gareths car is being fully Valeted (I forgot to mention to the guy doing it that it hasn't been cleaned in 5 years)

25/05 - My car being Valeted (I did mention mine is full of dog hair and he may find a long lost sausage roll in the back somewhere)

27/05 - Charing Cross Hospital - Ocrevus Round 2

29/05 - Oxygen again

That's all without the working from home and just living stuff - it's all starting to feel a little like normal again.

I had a lovely meal out with Claire and the girls on Sunday. It feels like such a long time since we were able to do anything like that. Much fun was had by us all.

Winston had to have surgery yesterday, where his face had swollen last month, it came back again so I asked his vet (not one of the revolving door of vet-lings that they have in) to deal with it. Winston had a tooth taken out and a clean up and is feeling quite sorry for himself, but is on the mend now

Bit of a drama this morning next doors rabbit is out and on the run - I did try to capture it but it was faster than me. You'd think having had one disappear 10 days ago they'd be a little more careful (they thought Murphy might have had him but I'm pretty sure he didn't because Murphy's rabbit dinners are easily identifiable) we have red kites, foxes and all sorts round here, bunnies should not be roaming wild (was in next-door but one's garden when last spotted) - I've emailed everyone to see if they have contact details but nobody's turned up yet.

AFTERNOON EDIT - Neighbours got home and the bunny was still hopping around, after much chasing around and linebacker movements she's been caught and the best news of the day - it wasn't another escapee - it was the one that went missing a week and a half ago. She's now back in her hutch safe but knackered - almost as knackered as I am 😂😂😂

Hope you're well



Friday, 30 April 2021

Restrictions lifting and things starting to change

 Here in the UK they're starting to lift some of the lockdown restrictions now. Pubs and restaurants opening although you can have table service to eat and drink outside. Most places are taking bookings so that they don't get too busy and life has a small amount of normal returning.

I have my next round of Ocrevus on May 27th and happily the urologist has put me on a round of antibiotics as it was noted that I had a UTI at my appointment last Monday ..... he's all given me some tablet in a stick HRT things which are not for 'oral' use 😆😆

The sun has been shining here for days, it looks glorious outside but there's a pretty brutal crosswind that goes right through you. 

I had Claire and Melly over on Saturday with Claire's beagles Toby and Harry - talk about absolute bedlam - 4 dogs doing laps of the garden. Bella was totally in her element, she had 3 boys to herself and loved it. I'd ordered afternoon tea for us all and we sat and gorged ourselves on pastries and cakes with soft drinks - all very grown up and responsible.

And now it's been 4 days since I wrote the above ^^^

I'm truly rubbish at keeping this updated these days - sorry about that

So apart from Ocrevus in 4 weeks what else is new ? 

Today would have been my brother Ian's 46th birthday and I've spent a fair amount of time this morning with tears running down my face, not sobbing and going to pieces, just emotional seeing all the pictures in my Facebook memories. 

We've had a home delivery box from Northcote arrive today with a yummy feast in it, gosh but thats a lot of food - we've judiciously started at lunchtime with the starter and soup course and will work our way through dinner later 😎 and then if we can scrape together 3/4 others maybe a poker game this evening.

A long weekend of giggles with Comedy events this weekend - Just The Tonic Comedy Club on Saturday night with Ed Gamble performing in the extension on Zoom and Sunday Evening a Facebook Live from Scott Bennett. 

Next Friday we have a 7 course Vegan Meal being delivered by Home-X (as a carnivore that this really excited me should give you an idea how much the 3 other meals we've had recently have impressed us that I want to give this a go) I so hope that once the world becomes a little more 'normal' that businesses like this one continue to do this rather than just going back to the old ways https://home-x.com

Then it's all going to get swirly .....

03/05 - Having a back, neck and shoulder massage and she's going to do some work on my legs too

11/05 - Blood Test  to check up on my naughty thyroid's current state of play. 

12/05 - Gareth is booked for his first Covid Vaccine (okay it's not me but it's exciting that his number has been called)

14/05 - Off to Watchet for a week long holiday

24/05 - Gareths car is being fully Valeted (I forgot to mention to the guy doing it that it hasn't been cleaned in 5 years)

25/05 - My car being Valeted (I did mention mine is full of dog hair and he may find a long lost sausage roll in the back somewhere)

27/05 - Charing Cross Hospital - Ocrevus Round 2

In June I think I'm going to have a bit of a rest 😂😂

Stay well and take care, much love from me 


Wednesday, 7 April 2021

I 'got out' this week

 It's been 5 months since I have been able to see Claire what with lockdown 2 and the Covid situation.

It took weeks of planning between us to just arrange a day where we could get together in her garden and catch up with yummy food but we did it.


Easter Sunday was so much fun, the 3 acquired sisters together again. The sun was shining, we had an amazing 'grazing box' of nibbles and mint chocolate Aero tiffin. We were able to sit out in the sunshine (once Melly and I had built the most complicated set of garden furniture in the world) Claires beagles spent the afternoon zooming around the garden with next doors Labrador puppy (which is huge and has minimal coordination as puppies do) 

It was wonderful and emotional and Claire's cancers are not being kind - it feels so much like we've been robbed of precious time with her for the last 5 months and we now have to find a way to make up for what we've lost and make sure that whatever is coming she has fun and hugs and love to make up for what we've lost.

Gareth and I did an amazing lamb leg dinner on the BBQ and then as I often do I fell asleep on the sofa 😂😂

The 3 day week last week was lovely and a 4 day one this week equally so.

5 weeks left until we have our week away for out holiday and 7 weeks until Ocrevus round 2.

April brings an awesome month of spoiling ourselves with lovely food

this month we have the following scheduled 

April 10th - home-x.com/products/roast-by-the-loveable-rogue-chicken-april-2021

April 19th - home-x.com/products/home-by-nico-april-2021-menu (this is for Gareth's birthday

April 30th - www.northcote.com/at-home/gourmet-boxes/

April fine dining sorted even if we aren't allowed out 😎

The pubs open here again (for outside drinks and dining) on April 14th so hopefully we can just get out together for a couple of hours with the dogs and do something (anything) different.

MS wise nothing is different, the good side really - I have a telephone appointment with the Neurologist team next Monday where I will be told the long awaited MRI results (which I've seen online and are happily unchanged once again)

08/01/2021 MRI Head :
08/01/2021 MRI Spine cervical
Clinical History

RRMS on ocrelizumab treatment to r/o new activity in view of DMT monitoring


In comparison to previous imaging of 1 year ago there are no new lesions seen within the brain or cervical cord. No evidence of PML or any second pathology.

Conclusions: Stable appearances

I guess they'll want to talk about how things have been since December and the last Ocrevus infusion - perhaps any 'pre-treatment' tests before the next infusion on May 27th

I'm also hoping that in the coming weeks we will get to see Gareths Mum and Dad when they're allowed to visit inside the home - first stop will be Gareths grandmother naturally but hopefully a quick stop with us on the way home again.

Hope you're taking care of you and yours xx

Tuesday, 30 March 2021

Is that a light I see at the end of the tunnel

 It's now officially been over a year since the Covid lockdowns started 

  • More than a year since we saw family in person. 
  • More than a year since we saw friends in person.
  • More than a year since I went into work and saw colleagues in person
We've had single short respite where we got out a couple of times for Covid safe meals (about July and August last year) 

A trip through the Costa Drive Thru is now classed as a treat and a 'trip out' where we interact with a human who doesn't live in our home.

Costco and Wellington Farm shop are the only places I've set foot in for more than 6 months

I've had both parts of my Covid Vaccine now so I'm cooking up some lovely antibodies to protect me against the virus.

The Easter weekend is coming 4 days off (for Gareth it's 5 because the company he works for gave everyone April fools day off too)

In May we have a week in Watchet (last years week replanned)

May 27th I have my next round of Ocrevus 

On top of all that allegedly life here in the UK is planning to start returning to what it was before all this got weird and awful.

Being able to see friends and family in person will be amazing and so very emotional

I'm looking forward to getting something done with my hair - it needs some serious trimming and shaping because I'm starting to look a little feral now 😂

Just sitting in a pub or restaurant and eating something cooked by someone else.

By this time next year hopefully this will be something we can look back at and be grateful to have come out the other side

Monday, 1 March 2021

I hate my thyroid - A LOT

 B-Day -2 Days

This weeks entry comes with the unusual name of I hate my thyroid - A LOT

It's true, the stupid little thing is making everything harder. (apart from the usual nonsense)

It has to be Hypo - that's the problem. Hypo often leads to weight gain, and in my case I could blame my thyroid but it really would be hypocritical of me because funny thyroid or not, it was me eating chocolate and crisps and sloshing it back with all that wine...... it might be partially to blame but I''m certainly not without fault.

However; for the last 4 weeks - I've been so very good on my diet - positively saintly in comparison to my usual wild abandon and I've gotten to within 0.4lb of a stone of weight loss - and that burns - it'll probably be gone by tomorrow but that's not the point I wanted it to be in month and it's not :(  - the 18.5 cumulative inches I've lost across the various measurable parts of me are lovely - they're a damn good start  but dammit I wanted that stone.

It's supposed to go at the rate it used to - my plan requires this if I am to achieve my goal and be back in my wedding dress for our 10th wedding anniversary on July 30th (yes the program manager in me does have some contingency built into that) then annoying things like a little hypo thyroid can quite honestly bugger right off because it's really messing with my master plan.

I went with Gareth and the dogs to the park yesterday. It was my suggestion that we walk down to the far end and back so we could sit in the sunshine - and I made it. Such simple things, it's not so very long ago that I jogged around the outside that field (3 years?) thinking I must get back in shape but now I'm really chuffed with a slow stumble down the middle and back again.

Exercise update - total distance completed on the recumbent bike in February - 81km (it's actually become a therapeutic way to get through log dull conference calls 😎)

Times change - I'm doing everything I can (now - yes I know I can't claim to have been completely saintly all along) to build back strength and stamina and a smoking hot skinny bod to go with it (okay that might be an exaggeration - at 48/9 years old things sadly tend to be affected by gravity far more severely than they were in my 20's)

I'm hoping for a miracle - I'm also hoping that I win the euro millions on Tuesday night - one of these is within my control ......

The question you're asking is 'is control within my control' LOL ..... after all I've gotten all excited like this many many times in the years since I started this - you're perfect right to be more than a little cynical about this 

..... watch this space 

The sun has been out here all weekend in Berkshire, sadly yesterday the wind was also back again so whilst it looked beautiful, sunshine blue skies - it was about 4 degrees :-)

Naturally I put shorts and a summer top on to expose some of my lesser seen regions to the sunshine (assuming the vitamin D could find it's way past the goosebumps on my skin.

The BBQ's have both had a work out of course - the charcoal for a spatchcocked whole Piri Piri chicken and the Webber Gas one for a burger for Gareth.

All is beige here - I did have a quick pootle around Costco at the weekend, didn't have a Costa Drive Thru because the queue was mahoosive.less than 8 weeks now until the next round of ocrevus 

Thats all for now, hope you are well xx