A cautionary tale …….
It just goes to show no matter how many times you tell
yourself that you’ve got all this MS / Lemtrada stuff sussed, there are still
some lessons which you need to learn again. This week I’m learning that I am
NOT Wonder Woman, that I do not have limitless energy and what when I overdo
things I’m going to pay the price for it.
The Wokingham Fayre on Monday was my ‘lesson’ – I simply had
not anticipated how much walking I would do during the day. As a result, I’m
probably best described as ‘broken’.
I’ve talked a lot in the past about how when I overdo things
it’s like the MS all comes rushing back in one big wave of pseudo-symptoms. It’s
usually something I’ve planned for in advance and prepared for lots of rest to
recuperate and then it all goes back to normal.
This time no planning was done. My legs are numb, weak and
very wobbly. My head is ‘soupy’ my eyes are on the frisk and I have tremors
throughout my body. It would be safer if I was using my walking stick, but to
be honest with the tremors I probably couldn’t hold it let alone put weight
through it – and then there’s the little matter of me actually having no idea
where the damn thing is – it’s been a couple of years since I needed it and it
seems to have ‘vanished’ LOL
I had to work from home yesterday because I didn’t feel safe
to drive, I’m back in the office today but probably shouldn’t be, and it’s all
a bit crap.
The fayre however was lovely we met up with friends caught
up with each other and to be honest I’d do it all again (although I’d not be
quite so ambitious about how many ‘laps of Wokingham’ I would do LOL
It’s going to take a couple more days of taking it easy
before all systems return to normal, and I’m definitely going for a nice big
oxygen top up on Saturday which should do the trick nicely, I’ve also booked in
for a midweek ‘top up’ tomorrow afternoon so 2 in 3 days should set me straight
again – actually it’s been weeks since I had an oxygen treatment so that could
be a contributing factor as to why it’s hit me so hard …….
In other news ….
We’ve finally got a builder who is going to sort out our
150+ year old stairs at home so I can stop falling down them and once it’s done
we can proceed with the home inspection for the fostering application. YAY
In 12 days I’m off to Portugal for 10 days of sunshine and
rest,
This isn’t meant to dishearten anyone or imply that there’s
something wrong other than me being an idiot and bringing this on myself
because I didn’t foresee what would happen.
It’s more of a gentle reminder to us all that whilst we may
feel on top of the world overdoing things can feel like you’re relapsing and to
take care of ourselves.
So I’ve learnt my lesson (again) I wonder how long I’ll
remember it for this time xxx
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